So it was chemo week last week and no riding for me š. Last Monday I went to the Social Security office to apply for Medicare and was quickly told that I do not qualify. Now Iāve been paying $1,100/ month for COBRA coverage, but that will only last until November. Itās pretty fucking sad to pay into a system for over 45 years and get kicked to the curb. So basically I was told no and I walked out of the office extremely dejected.
The next day I started chemo week and everything went as usual except the little guy in me freaking out about my bleak future. Then I heard they would run CEA numbers and that added even more stress. Two weeks prior, they opted not to dose me with the biologic because my blood pressure went up so I was concerned about the results.
Wednesday started with an email from Labcorp saying the bloodwork results were in. I figured the week was already shit so letās see. Good news! CEA numbers went down 100 or so pointsā¦.nothing huge but Iāll take it.
Thursday started like all others except for a weird thing with my right eye. It was like there was something in it as far as vision is concerned, but it didnāt feel like it. Oh great, another drug issue, I hope. I kept it close to the vest as my schedule showed that Dr Amin had scheduled a visit for Mondayā¦..oh great.
So fast forward to today and my eye had gotten a little worse and I was worried about how today would go. You think by now I would have learned to roll with it better, but that whole living or dying thing kinda stops me from doing that. My appointment was for 3pm and he didnāt walk in the examination room until 4:10. I was damn near in a state by the time he arrived and he wasnāt too worried about the numbers saying they rise and fall and since I look and feel good, heās happy. Then I brought up the eye and he thinks it could be a restricted blood vessel to my eye effected by my rise in BP so we will monitor that.
So this whole thing is such a roller coaster of emotions that itās hard to keep in check. So I went home after buying low dose aspirin and had my meltdown.
Tomorrow I will go back to the Social Security office and see if I can talk to a supervisor. If I had ALS I could be covered now. Go figure.
But I do look forward to parts of this week as I will be riding with
@Juggernaut ,
@Mitch ,
@pooriggy and
@Matt so that makes me happy. I could use some silliness.
The rest of the week I will be posting tools and other stuff I need to sell because I will have to move, but at least I have some strength to do that. I hope you folks need some stuff!!